SWAN UK (syndromes without a name)
SWAN UK (syndromes without a name) is the only dedicated support network in the UK for families of children and young adults with undiagnosed genetic conditions. We are run by the charity Genetic Alliance UK.
Joining is free for any family in the UK with a child (0-25) affected by an undiagnosed genetic condition.
As a member of SWAN UK you can:
- Make contact with other families who understand the unique challenges of raising a child affected by an undiagnosed genetic condition
- Attend free, fun whole-family events
- Access 24/7 information and support through our online forums
- Receive our monthly and quarterly newsletters
Email: email@example.com to find out more.
For general enquiries email: firstname.lastname@example.org
To join SWAN UK email: email@example.com
Who to contact
Where to go
- Genetic Alliance UK
Level 3, Barclay House
37 Queen Square
- WC1N 3BH
- Age Ranges
- Referral required